Tag Archives: tbi

Last week, it was terrible allergies, this week, it’s respiratory infection. I just want to sleep, but, too much to do, so I just keep plugging away.

But,I just had to pop on here and brag on my oldest son! The past 2 weeks he’s actually dusted off his walker and has been using it around the house! More than he’s in his wheelchair! He’s also been trying to do more! 

But, his mental state is not so great. He’s back to barely sleeping, refusing some meals, and when he does sleep, he’s having vivid dreams that he’s believing are real. We’re going back to Dr to get meds adjusted.

I just want to sleep.

Playing catch up

It’s been crazy busy around here!!
Still going through the hoops of getting the oldest son’s ssi renewed, but, he has been more motivated lately on his therapy! He’s even gotten his walker back out! Yay! 
This may not sound like much, but, Huge accomplishment happened last week! He’s been trying for months to make his bed, he’s finally able to do it! He can get all four corners of the mattress covers on, and they stay tucked!! Don’t ever take small things for granted!

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Munchkin and I went out with friends tonight and had a very good time! Can’t wait for our next ‘Girls night’! For some unknown reason, Munchkin is now calling her best friend’s mom, George. All evening, it was ‘George this’ and ‘George that.’
April was another Great month with my Perfectly Posh business! I am shocked and amazed how well I’m doing with this! I earned my third Monthly Award, and check out my team stats!!

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Wow!!!!!

Mood swings

I try very very hard to be understanding, but, there are times that my oldest son’s moodiness drives me insane!!
Sits, head down, won’t look at anyone, won’t take part in conversation, won’t even say what he wants or if he wants to eat. But, yet, if I ask him what’s wrong, he tells me, ‘Nothing.’ And I cannot get him to talk at all. Especially when 30 minutes before, he was exact opposite – talking, laughing, joking….

Social security

Social security has decided it’s time to review my son’s case. I’ve already filled out one packet of forms and returned those last week, only to get two more thick packets this week. Nothing more depressing than having to relive things, to have to write down what all he could do before the accident and what all he can no longer do. How active he was before compared to now. How he had friends he saw daily before, to now, barely seeing or even hearing from anyone for months on end.
I really hate this.

Shopping for Valentine’s Day

OK, I think I can write about this now.

My oldest wanted to buy his girlfriend a gift for Valentine’s day, (imagine that! haha)  so, I took him shopping on Friday.  He didn’t have a lot that he could spend, but, it wasn’t too awful of an amount.  He insisted on going downtown to a jewelry store.  I warned him that there wouldn’t be a lot he could buy there with the amount he had, but, I did think that maybe he would find a necklace or bracelet.  Instead, what we found was the most condescending bitch!  (OK, apparently I’m still pissed,)

She overlooked him, even though he was the one looking in the cases, and asked me if there was anything she could show me.  I told her that he was the one shopping for his girlfriend.  She then spoke to him like he was a child. (My oldest son is 23!!!)  He told her the price range, she said she thought they might have 1 thing, and brought over a very ugly bracelet. The disappointment in his face was unmistakable. She also kept standing behind his chair and Winking at me!!!!!  I started telling him that if he did not like that, he did NOT have to buy it.  She never did show him anything else, even though I saw a several necklaces in his price range. She just kept talking to him like he was a child, and that was the only thing he could possibly buy from that store. And winking at me! I finally convinced him that we should go and look some more, and if he didn’t find anything else, we could come back and get that. (Yeah, right)  She said her goodbyes and “come back anytime, we will be open tomorrow”, went back over to her group of co-workers and back to talking with them.  Not even an offer of help with the door.

So, there I was, with rambunctious Munchkin, pushing  the oldest’s chair, and trying to maneuver the door which was barely wide enough to get his chair through plus, opened it out. Not that I expect help from anyone, but, usually people offer to help with doors. I will not be back through those doors!!

And, I have news for her – she better appreciate the life she has, because it can change in an instant, just like ours did!  I have no idea how much she makes, but, I would be willing to bet that my son made more than she does. He hasn’t always had to be careful on how much he spends.  And, she shouldn’t treat people like they don’t matter just because they are in a wheelchair and don’t have several hundreds of dollars to spend, you never know when circumstances are going to change. She was talking to him and acting like he was a first grader with his first girlfriend.

And , why the hell did she keep winking at me???

My “dream” vacation

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This really struck a chord with me. I’ve been kind of down the past few weeks because my siblings were planning and invited me on what was my ‘dream vacation’. One I’ve talked about wanted to do with my boys since they were babies. And now, we can’t.
My dream vacation was to relive an annual trip I made with my dad into the Boundary Waters Canoe Area in northern Minnesota. We would pack up the pick up, drive many miles down a dirt road, until we got to a certain river.  Then we’d unload the truck and carefully pack it all into the canoe and take off, knowing there’d be a portage ahead of us.  We’d finally make it to the lake, where we’d continue paddling until we got to the spot he wanted to camp. I say “he wanted to camp” because by the time we’d get to the lake, I’d be so tired of paddling and being in the canoe that the first spot looked perfect to me! It was as rustic of a camping trip as you can make.  No motors or anything allowed.  Everything you packed in, you had to pack back out.  We would fish, cook over the campfire, make s’mores all weekend, then load up and paddle back to the pick up, where I’d sleep the entire drive home. A trip my camping/hunting/fishing boys would have absolutely loved!  But, not a trip for a wheelchair or a toddler. So, therefore, no longer a trip for us.

I have got to quit being bummed about this and find something that we Can do.  Who knows? Maybe someday that trip will be possible, but, for now, it’s not doing anyone any good for me to sit around pouting because we can’t.

By the way, my older siblings have decided against that trip and are now renting a lake house for a weekend.  We still aren’t going, too many miles away right in the middle of one of my busiest months of the year. Plus, none of them have little ones – their kids are all adult, most with kids of their own, and it really hasn’t sounded like little ones were included in the invitation to join them.

Frustrating!

I don’t know what’s going on, but, my oldest son is going through another of his grumpy stages.  He’s not too bad in the mornings, but, by afternoon, it’s obvious something is bothering him, but, he just says Nothing.

He’s also refusing to eat what is cooked for meals!  Or, at least, not eating when the rest of us eat.  Eventually, he will finally decide to eat, after changing his mind several times, even after whatever he asked for is being fixed.  The meal thing is really going to drive me crazy.  When he changes his mind, his tone is like he’s mad at whoever is fixing something for him, “Why are you warming up lasagna?”  “Because you just said you wanted it!”  “No, I don’t! I’m not even hungry.”