Tag Archives: random thoughts

Just let me know, Son!!!!!

My oldest son had a lot of problems with his catheter while he was in the hospitals.  Once, it was left in for weeks longer than it should have been – this happened after changing hospitals, I don’t feel there was enough communication?  It would also become blocked. We ended up at the ER more than once. The worst ER visit was utterly ridiculous!  Several hours in the bright, busy, hallway with him on his gurney, fighting his father and I horribly!  He kept trying to take his trache out.  On one of my many trips to the nurse’s desk for help, I was informed that we were his parents, we should be able to handle him.  Excuse me?!  We were in no way medically trained, and had no training whatsoever on traches, or how to “handle” a TBI patient who was in pain! I did remind this man, who was supposed to be a nurse, that my son had a TBI, and they had him in a brightly lit, busy area, and that he needed to be in a quiet, darkened room!!  We were also going on several HOURS that his catheter had been completely blocked!!!!    Let’s not forget, I was also about 8 months pregnant at this time. I have also been told that his bladder ended up getting perforated.  Yes. I am still very bitter about that visit.  It ended up being over 8 hours before they finally got a dr in that was able to finally get him some relief. That is one hospital that our family will NOT go to unless there is absolutely no other alternative!!!!

I really believe that all those problems are causes behind his current problems of bed wetting, and not always making it to the bathroom in time.  I believe that, and understand that.  But, I do have to ask, Why can’t he just TELL me when he’s had an accident instead of just leaving the room and leaving the mess for me to find?????? Especially when I just had to clean up a spill from his 2 year old sister, doing laundry, making his bed, and all I wanted to do was cut out a princess dress for Munchkin.

That’s just Rude!

What gives people the “right” to go around asking personal questions that are really none of their business? Or, making comments on issues that are personal.  Do they seriously not think? Where have manners gone?

I am so tired of hearing “Are you finally going to put this one in school?”   I have been getting asked this question since I was pregnant!!!  Seriously, what business is it of anyone else’s??  You don’t catch me going around, asking people, “So, are you finally going to pull your child out of school?”  I don’t because it’s none of my business, not to mention, it is a PERSONAL decision that each family needs to make for themselves!!  Right now, I just want to scream, “SHE’s 2!!!!!!!!!  Let her be little!!” My friend really thinks that I should start replying, “Are you going to start home schooling?”

My husband is tired of hearing “She was an accident, wasn’t she?” That question was asked frequently while I was pregnant, but, yes, it is Still being asked.  Isn’t that something nice for her to grow up hearing? Isn’t anything “off-limits” these days?

 

Where to begin?

Yes. It’s been busy, crazy, hectic.  The usual, actually.  I just haven’t taken time to write.

Let’s see, I was sick for about 3 weeks with a bladder infection.  Sick enough that I really didn’t do much of anything but what was absolutely necessary.

Munchkin and Middle son’s girlfriend were in a benefit pageant last weekend. (on a side note, I have got to come up with a nickname for her, “middle son’s girlfriend” is just getting too long to write all the time, and just sounds weird!)  The girls in the pageant collecting over 10,000 books for OK Literacy Coalition!!  Unnamed girl won Grand Supreme!!!  Munchkin won “Once upon a time Wear” and Beauty Supreme!!  I have to admit, I am shocked and amazed at the “Special event wear” win.  There is only 1 award for the entire natural pageant.  I have TRIED very hard at a couple other of these benefit pageants to win that one, worked very hard on special theme outfit, blinged them up, had special music mix made, worked with her Perfection Studios coach on her routine.  This time, I have to admit, I was more concerned with that poor girl I haven’t got a nickname for yet, trying to help her with her outfit and everything,  and just got out Munchkin’s “little red riding hood” outfit that she has worn before.  Tried it on her the night before we left, added a little fabric to the bottom of the shirt so it’d stay tucked in a couple hours before we left, and called it good.

So, the pageant started Friday night.  I planned on leaving around 1.  I didn’t get headed that way until after 3.  The oldest was supposed to go with me.  He was being difficult all day long, kept going back and forth on whether he was going or not. He actually had a chance that morning to go to OKC with his girlfriend, but he argued with her until she absolutely had to leave. I had several errands I had to run in town before I left, so after lunch, I told him if he was going, get his clothes and stuff together while I got the errands done, and I’d be back as soon as I was finished, would put his stuff in the suitcase, and we’d leave.  I started getting text messages and phone calls from him, asking what was taking so long, why did I leave him, what was taking so long, etc etc.  I got back, and he had nothing together, was just mad at me, saying I had left him.  I told him again, that he was supposed to get the clothes he wanted while I was getting that stuff done, it would save time if he had done that while I did the other.  I ended up telling him that I was already 2 hours late, I did not have time to argue or beg and plead with him to go with me, Yes, I wanted him to go, but, it was up to him, and if he wanted to go, we needed to grab his clothes and leave.  He griped at me some more about just leaving him when I went to town, and said he wasn’t going.  I asked him a couple more times while I got the car loaded, and he still just grumped around, so I really did leave him!  Honestly, I had been somewhat worrying about how I was going to push his chair, take care of his bathroom needs, etc and also chase Munchkin and get her ready for her events, plus help unnamed girl get ready for her events, without the oldest’s girlfriend there or either of his brothers to help.  Not to mention, he gets irritated when we have to leave him while we’re in the dressing room at pageants. I was also still not feeling the greatest with that dang infection.

Friday night, both girls did great!

Saturday morning, I woke up completely covered from the neck down with hives. Horribly covered! Itched like Crazy!!!!!! The Once Upon a Time wear was the last event for the girls.  Munchkin was on stage, ready to start, and the sound system went out.  We sat on the side of the stage for about 1/2 an hour while they worked on it.  She was extremely rambunctious, I was tired, itchy, and achy, and I just about said the heck with it, and almost pulled her from it.  After both girls did that, we went back to the oldest’s girlfriend’s house (need a nickname for her, too!!!)  had lunch, napped, and went back for Crowning.

Anna and Elsa were there and did the crowning.  Munchkin was absolutely in AWE!  Just kept staring and staring, and would occasionally say, “Mama!  It’s Elsa!!!!  Mama!  It’s Anna!!!!!  Elsa’s on stage!!!! Anna’s on stage!!!!”  She was so thrilled, I was glad we went.

When we got home Saturday night, and Unnamed Girl excitedly told the youngest and the Love of My Life all about everything, showed off everything they had won.  Later on, the Love of my Life told me that he thought pageants were very good for her, he loved seeing her so excited and happy, he doesn’t usually see and hear her that animated about things.

An overwhelming day

This morning has been overload!!!! 

Oldest is being difficult, has decided he doesn’t want to go to the concert (expected)  he’s being grumpy, and has even broken up with his girlfriend. (happens often when he’s in this mood!  She’s a saint for putting up with it!)

14 yo has been a fight to get out of bed, and stay awake to do his school work and chores.  He keeps falling asleep while reading, then arguing with me, telling me he wasn’t sleeping.  I’m sorry, I just stood there watching you for several minutes with your eyes closed, and no page turning going on, you even jumped when I said something!!

Munchkin has been peeing all over the house!  She’s done so good staying dry all week, but this morning, she’s gone through 4 pair of panties in 2 hours.

I have tons of editing to finish, like always.  At some point, I really need to get some groceries in this house, laundry is piled sky high, and I have mentioned I’m sick this week?  Kidney infection, my back and hips are killing me!!!

But, you know what? You suck it up, buttercup!  Some things just have to be done, whether you “feel” like it or not. It’s called responsibility, and being an adult.  Remember, there are always things to be thankful for, and if you look, you can always find reasons to laugh, or at least smile!  Life is what YOU make of it, even on the bad days!  You have the choice to sit back on your pity pot, or shake it all off and move on!  I am choosing to put a smile on my face, thank God that we have all these clothes, even if they do need to be washed, at least I have a washer and dryer!  Yes, my boys that are home today have horrible attitudes, but, they are home, alive and well!!  And, their bad moods will pass.  And, sooner or later, things will “click” with the munchkin, and she will use the bathroom all the time, and the time potty training is no time at all when compared to an entire lifetime. 🙂

Friday Catch up

It has been a busy week.  Started school with youngest son.  9th grade!  Wow, where has time gone??????  Nope, it hasn’t gone exactly smoothly, it’s been very difficult to keep him on task, his mind is completely on dirt bikes.

He sold his Yamaha on Monday.  Tuesday, I had to take a water sample to DEQ, and from there, we went to Tuttle to look at a KTM.  Surprise, surprise, he bought it. The rest of the week has been “Can I ride? Can I go out and do such and such to my bike??”

I have a solution to the nightly medicine fight!  We simply switched to taking the anti-depressants in the morning, and there’s been no problem so far. Such a simple solution, but yet, it has taken weeks to think of it.

And, now, I’ve got to get back to editing photos for two proof books. 

I want a date night or weekend away with my husband.  Even though we’re both at home, I feel like we haven’t had time together in a very long time.

 

 

I don’t know.

I keep feeling in my heart like I should start posting more about the day to day issues/trials/whatever you want to call it of being mom/care taker of an adult son with a TBI, while also having 2 teenage sons and a 2 year old daughter. Not to mention an adult step daughter who’s gone off the deep end into drug addiction.
But, I resist. I don’t know how to word things without it coming across as
whiny or ‘poor pitiful me.’ I don’t want people to feel sorry for us. There isn’t any reason for that. It’s Life. Things happen, sometimes good, sometimes bad. There is Always something to give thanks for, and moments of laughter, even during the bad. Even during the worst times you can imagine.
I just keep feeling like I should, maybe it would help someone going through similar? Maybe it would help me?