My oldest son had a lot of problems with his catheter while he was in the hospitals. Once, it was left in for weeks longer than it should have been – this happened after changing hospitals, I don’t feel there was enough communication? It would also become blocked. We ended up at the ER more than once. The worst ER visit was utterly ridiculous! Several hours in the bright, busy, hallway with him on his gurney, fighting his father and I horribly! He kept trying to take his trache out. On one of my many trips to the nurse’s desk for help, I was informed that we were his parents, we should be able to handle him. Excuse me?! We were in no way medically trained, and had no training whatsoever on traches, or how to “handle” a TBI patient who was in pain! I did remind this man, who was supposed to be a nurse, that my son had a TBI, and they had him in a brightly lit, busy area, and that he needed to be in a quiet, darkened room!! We were also going on several HOURS that his catheter had been completely blocked!!!! Let’s not forget, I was also about 8 months pregnant at this time. I have also been told that his bladder ended up getting perforated. Yes. I am still very bitter about that visit. It ended up being over 8 hours before they finally got a dr in that was able to finally get him some relief. That is one hospital that our family will NOT go to unless there is absolutely no other alternative!!!!
I really believe that all those problems are causes behind his current problems of bed wetting, and not always making it to the bathroom in time. I believe that, and understand that. But, I do have to ask, Why can’t he just TELL me when he’s had an accident instead of just leaving the room and leaving the mess for me to find?????? Especially when I just had to clean up a spill from his 2 year old sister, doing laundry, making his bed, and all I wanted to do was cut out a princess dress for Munchkin.